Help Blair get life-altering medication

Cause Starting Date: December 14, 2017

Started By: penny cameron
Beneficiary: Penny Cameron

Report this cause to warm & fuzzy

$96
$25,000
24% Complete
(9,600FZ RAISED)
(TARGET 2,500,000FZ)

57

DAYS LEFT

0

ENDORSEMENTS

8

DONATIONS

Donate or share and you’ll earn rewards

Help Blair have quality of life by having an infusion of Anakinra.

My son Blair suffers from a very rare genetic disease called hyperimmunglobulinemia D with periodic fever syndrome. HIDS for short.

Currently there are only 300 children in the world with this cruel painful disease.

Blair is currently on extremely painful daily injections of a biologic drug called anakinra. This is helping a little but not enough to be able to attend school for more than a couple of hours a week - if we are lucky.

This medication costs over $20,000 a year.

We are asking for your help to try this drug in an infused state for a month, hopefully being able to top up with the injections when needed, allowing him to have a better quality of life for a little while. Unfortunately anakinra infusion costs a lot more, and this is why we need your help. Blair's rheumatologist, Dr Chaitow, only gave an estimated cost of $60,000.

Please help me, help my son.

Thanks to all who donated!